I be strokin’

September was quite a month.

Over the span of two weeks, I had two seizures, or, as they are referred to clinically, “hemorrhagic strokes,” due to a brain bleed.

I don’t like using the “stroke” word. Conjures up bad memories of paralysis and slurred speech and, you know, disability. And we don’t reckon well with disability in our society.

The first occurred on August 28th when I awoke to what I thought were leg cramps, only to realize that something was horribly wrong . The next thing I knew, I was lying on the floor beside my bed, my daughter, who was standing nearby, already having called 911. Naturally, I was  disoriented, but we both remained remarkably calm given the circumstances.

My daughter, as many of you know, is an exemplary human being, by the way. She performs exceptionally well under pressure (takes after her mother).

Two EMS techs promptly arrived, took my vitals, and, since the results were basically “normal ”, actually asked me if I wanted to go to the hospital. Reckoning (correctly) that I’d just had a seizure, I replied, “of course”. I was even able to walk to the gurney.

Twelve hours at U of M hospital and every scan known to man turned up nothing out of the ordinary, so they eventually released me having informed me that a certain percentage of the population will have a seizure in their lives and never have another. Of course, they advised, managing my weight and blood pressure would probably help prevent recurrence and I promised to “do better”, and put this aberration off to work stress and grieving the loss of my wife in April.

In the second instance, two weeks to the day, on September 11th, I was sitting in my home office when I became light-headed and I noticed tingling in my left foot. My daughter placed a second 911 call. This time, I had to be carried to the gurney and was awake for the onset of the second seizure enroute to U of M.

This I do not recommend.

Another round of scans turned up a brain bleed in the right lower quadrant of my dura. I have learned that the dura is a “thick membrane made of dense irregular connective tissue that surrounds the brain and spinal cord.” The source of the bleed was an “AV Fistula” which is “an irregular connection between an artery and a vein.” Or, as one of the smart people at U of M put it “a really gnarly mass of blood vessels that you were probably born with.” The blood leaked from my dura and made contact with my gray matter, which is never a good thing. 

Note: There is a “blood-brain barrier” for a reason, folks.

Do not cross it.

Now here’s the thing: a lot of people are born with AV Fistulas (or develop them at some point) and live their entire lives knowing nothing about them . A very small percentage of people will have them burst because of unmanaged (or poorly managed) high blood pressure and/or stress.

Of course, I was guilty of the former and living through the latter. Fortunately, the only “damage” resulting from this whole affair is some numbness in my left foot, which has greatly improved over time. But the numbness doesn’t hinder me;  I’ve taken to walking about 4 miles a day for exercise, which has helped me drop about 35 pounds and significantly reduced my blood pressure.

What have I learned?

Well, this whole year has taught me that I have control over nothing, something I knew but now truly understand. However I do have responsibilities; to my faith, my family, my job, and myself, to name a few. I’m no martyr, but I really wasn’t looking after that last item on the list. So I’ve made my health a priority. Otherwise, I really cannot live up to any other responsibilities, can I?

What did I get out of all of this?

Certainly, charity and support from family and extended family. “Extended family” being a wholly strange term that usually applies to friends. We generally think of the concept of extended family as “taking the other in,” of extending familial bonds beyond blood ties. Which, wrongly, makes family exclusive. As if, someone is being “let in” to a select club.

In my case, I see it as the other way around. Others extended themselves for me. It’s hard for us as Americans, and especially for Midwesteners, to accept the kindness of others, because we often labor under the notion that we are undeserving of care, of mercy, and, even of love.

But isn’t that the point of mercy, that it’s “unmerited favor?” You cannot “earn” the love of the people that care for you. “Earned love” is just “payback.” Something transactional and rancid and also, unfortunately, all too American.

Besides, “blood ties” are just a matter of circumstance. The instances of blood relatives who cannot stand each other are as common as water. I’m satisfied  with the family that I picked and that picked me.

September was one for the books, as was the entire year. I’m glad that things are as well as they are. 

The title I picked for this essay is a play on words from the title of an old Clarence Carter song (IYKYK). The carnal implications of Mr. Carter’s lyrics aside, there is also a commitment to stay with it, to keep going. 

To persevere. 

At the end of it all, that’s what I’m left with.

In spite of two successive strokes, perhaps, even because of them, I be strokin’.

3 thoughts on “I be strokin’

  1. Barry!!! Glad this was figured out. There are certainly some words of wisdom and a reminder in there. It has been so beautiful connecting through your words, and so educational. Keep doing you and sharing for us to learn. Prayers / hugs / love!

  2. Hey friend. My mom (of course) pointed me toward your post. I wish I had something wise or at least clever to say that could help you heal or at least help you persevere. I guess just know that I’m thinking of you and happy to be a cousin or stepbrother or whatever I am in your extended family. Love & hope.

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